Tag: ASD

Posted in ASD, Inflammation, PANDAS, PANS

Anti-Inflammatory for ASD/PANDAS/PANS

Posted on by Annie Eskeldson

I have been trying a new anti-inflammatory for use with PANDAS/PANS flares. It’s called Panda Bear and is a supplement produced by Spectrum Awakening. The company belongs to Dr Skowron who has specialized as a physician for the children and families of the autism community. He is recognized by TACA, The Autism Hope Alliance, RFK Jr, Temple Grandin, and others. I found him about six months ago after RFK Jr announced that Leucoverin improved the symptoms found in autism, including bringing about speech.

I know many of my readers are rolling their eyes, thinking ‘whoop-di-do’ since we have known this info for a couple of decades; it was not earth shattering by any means. And, I agree with you. The good news; however, is that we are no longer censored (at least not as bad as we used to be.) And, because it had been several years since I explored Leucovin (high dose folinic acid), as it was not successful for us; I decided it was worth another look.

I quickly found Dr. Skowron and Autism Awakening where I was able to find Leucovin as Folinic Acid that I could purchase without a prescription. To my surprise, I also found an anti-inflammatory for PANDAS/PANS.

Below is some information about the anti-inflammatory ingredient in the PANDA Bear supplement. It is fat soluble, so it does not dissolve in water or juice. It is tasteless, and, as you know I like to keep short accounts with supplements, so we just go ahead and take the straight powder right off the measuring spoon. I suggest 1/8 tsp (or less if you need) up to 3 times a day. Dr. Skowron is very clear about the subjectivity of the supplements; everyone is so different. Low and slow is often our motto and Dr. Skowron often states that supplements are by trial and error, each patient is different so starting low and working up slow is essential to minimizing effects you don’t want and maximizing the ones you do.

As a Biofeedback Specialist myself, vitamins A,D,E, and K are commonly deficient in clients’ scans. PANDA Bear provides these as high quality ingredients, but they also add PEA which is Palmitoylethanolamide. That might be new to you, it sure was to me. But below is some actual research on the substance. I’ve included some conclusions and discussions from the research for brevity but provided links so that you can study it further.

Also, those of you familiar with ATEC, did you know there is a PTEC (for PANDAS/PANS)? The link is just below. The PTEC is the same kind of measurement tool as the ATEC. Whether you are at a baseline with no flares, in a brand new flare, or one that is dragging on, this will be a great way to gauge your protocols as you see/don’t see improvement. Here is the link.

STUDIES on PEA

1.Low-dose combination of ultramicronized palmitoylethanolamide and docosahexaenoic acid on neurosteroid and neuroinflammatory dysregulation in autism spectrum disorders.

Overall, our findings demonstrate the potential synergistic effect of the low-dose combination of PEA-um and DHA, confirming their therapeutic effect in ASD and the involvement of neurosteroids in their mechanism of action.

https://www.sciencedirect.com/science/article/pii/S1878747925002946

2. Palmitoylethanolamide and Its Biobehavioral Correlates in Autism Spectrum Disorder: A Systematic Review of Human and Animal Evidence

This review revealed a paucity of observational and experimental investigations of PEA and its pathway in ASD. However, the 10 studies discussed here seem to converge in reporting alterations of the PEA signaling, implications for ASD-related biobehavioral manifestations, and benefits from PEA supplementation. In particular, PEA may be useful in improving language difficulties and stereotypic behavior as well as in controlling hyperactivity and irritability which co-occur frequently in ASD. Notably, no serious adverse effects were observed with the administration of the compound in all human studies reviewed here, making PEA supplementation a potentially valid and reasonably safe therapeutic intervention in ASD.

https://pmc.ncbi.nlm.nih.gov/articles/PMC8073263/

In my opinion, rotating items for inflammation has been the best for us. We use herbal options like Chinese Skullcap alongside Cryptolepis and Bidens for flares with infections; homeopathic options such as Belladonna; but honestly, as a Homeopath, it seems like a repertorization is needed rather than just jumping to Belladonna. I have successfully used Des Bio PANDAS products as well – I am a practitioner with Des Bio if you are interested in their products. We’ve also used NAC, Cell Core Binders (I am also a practitioner with Cell Core if you need products.) I’ve added the Spectrum Awakening PANDA Bear to our rotation as well, and I have to say that I am very happy with it and have been recommending it to clients.

I have added many other Spectrum Awakening products to my own protocols, especially the B’s, and am very happy with them. I’ve been testing them out for several months and will continue to write about them. I am not affiliated with the company, I am just happy to see good results. I feel like Dr Skowron worked hard to make high quality products, displayed them in an organized manner on his website, and provided education for those of us who are hungry for it.

Posted in ASD, Biofeedback, Kidneys, Liver, PANS

Hellward Plunge

Posted on by Annie Eskeldson

I have been an absentee blogger for months as all of my time and energy has been poured into doctoring one of ours back to health, again.

I still can’t believe he could tank so low after we had recovered so high. This upheaval was unbearable after achieving a doable level of life.

In addition to improved physical health, we had gained a degree of emotional healing as the final visuals of property damage were getting sorted alongside the heavy emotions surrounding the PANDAS/PANS trauma we’d lived for so many years.

We had healing. I was happy. I was helping others along the same treacherous path.

And out of nowhere, we were rudely side-swiped with organ problems. Gall bladder and liver were the issue at first; kidneys and bladder were to follow. The organs were clogged, full of stones, and basically a rat’s nest of dysfunction and intolerable pain on top of the leaky gut, full blown eczema, and parasite problems that were already obvious.

In the very moment when our doctor was identifying the problems of our backslide, I instantly dissolved into a puddle of anxiety and grief. I felt alone and medically deserted, once again. A migraine overtook me so bad that I was not cohesive, and I could no longer speak. I was in shock. An appointment for my son suddenly became mine. The doctor gave me some pressure points to compress and after about twenty minutes, my head pain along with the panic drained like rushing water from my brain. I cried, uncontrollably, for two hours while my shivering body craved sunlight so desperately that, like a cat, I followed the sun around the windows of our home to stay in it’s beams.

Once the migraine pain was gone and my emotions settled, I immediately braced myself to carefully prod along, one step at a time, to solve these gargantuan organ problems. My resolve became stronger than ever.

I’m happy and proud to say that five months later this roller coaster ride of medical complications has taken me on a journey, once again, that may provide insight for others.

I’m going to be writing about how we are solving our gall bladder, liver, and urinary tract problems including liver and kidney stones which I hope others find helpful and mind blowing. These posts will be soon to follow as I’m still gathering my overwhelming thoughts and every day of success is another brick of proof. I will include resources and supplements we used.

I want to address what caused the downward plunge so others can maybe avoid the same pitfalls. Why did we go down so hard and so dramatically after gaining so much ground? What happened? After all, we spent years and thousands of dollars on healing. Was it a complete waste?

The answers here are many, so I’m just going to list them.

First, detoxing too fast with organs that are weak is a no-no. How fast is too fast? That’s individual. For one of my family members even slow is too fast. He needs ultra-micro slow. In my opinion, needing to add bile salts is a red flag that you are moving too fast. Some may indeed just need the support. However, if auto-immunity is why you’re detoxing (PANDAS, PANS, ASD included), I’d proceed with caution.

Second, binders. We used doctor prescribed binders that you can get from Microbe Formulas. We’ve successfully used them all, but one particular binder that binds viruses, radiation, and chemicals has a formula that has recently changed. We were using the old formula and people were complaining about urinary problems like we were….a year ago. They have since changed the formula, so hopefully others do not have issue like we did., but to say that I’m upset about using a binder that was causing urinary problems is an understatement, because this is what started clogging the whole system. When using binders it is very important to drink a ton of water. Microbe Formulas recommends three times the amount of water normally consumed.

Third. Without our permission or knowledge, our electric company trespassed onto our property and installed a smart meter which I have vehemently refused for years because of the sensitivity my family has to EMF, WiFi, and radiation. This installation aligns perfectly with our decline in health.

In conclusion, this is just an update to where I’ve been and a short list of stumbling blocks. My next posts are going to outline the amazing journey we have been on recovering from some major organ disorders.

I will give you a little hint and mention that we have been using Biofeedback the last four months with incredible results. A trusted bestie in the trenches recommended it to me. I will write more specifically about how we have eczema all clear (again), leaky gut healed, ulcers healing, liver and kidney stones on their way out and so much more from just four short months of biofeedback.

I’ll be back soon to write about healing the gall bladder and liver. See you then!

Posted in ASD, Biofeedback, detox, Herbal, Homeopathic, New Leaf Holistic, PANDAS, PANS, Parasites

Asd, Pans, Pandas, Lyme, and Parasites

Posted on by Annie Eskeldson

I have spent countless hours reviewing medical journals and articles, as well as poring over experiences posted in medical/parental support groups in hopes of finding help for my family coping with severe ASD. The anguish I read and the agony we have lived has fully traumatized me. I have worked so hard on these issues in our home, and I know you have too. I have done everything minus stem cell and now I wish I had started here, with parasites, first. I hope I can save you years of distress. (Edit 2023 – I just went back to college. It was clear that no one could help us. I focused on Homeopathy, Biofeedback, and natural medicine. It is clear to me still, that detox needs to happen, but Biofeedback, Homeopathy, and Herbal were the clear winning protocols for us and what I focused on in school. I opened my own practice and there is a link below the article if you would like help.)

We had been through the whole ASD debacle which, for us, is vaccine injury and vitamin K poisoning as per pediatrician MD and immunologist MD/PhD.

I have been recovering our family for about 15 years, half of which I didn’t even realize I was using biomed. Diet and gut were obvious issues that I somewhat addressed during the early years. But intentionally, I have used biomed for over seven years implementing diet changes, supplementation, safe chelation which was incredibly helpful for one of mine; scores of blood, urine, stool, and hair samples, allergy shots, camel milk, homeopathy, MAPS doc, tons of therapy, the whole nine yards.

But nothing kicked recovery square into high gear like connecting the dots of ASD, PANS, PANDAS, Lyme and parasites. Once this connection was made we got full relief from PANDAS, became able to control PANS while ASD and Lyme continue to die a slow death.

We did not use a single (pharma) antibiotic, we definitely did not use a single psychotropic drug. And, from my research, all of the above makes things worse.

Why?

Because the body is already boiling over with infection, the gut is often so wholly ruined, and the immune system can no longer methylate (process) the destructive properties of synthetic drugs out of the body. Let’s get real here. The toxic, chemical ingredients of pharma drugs aren’t recognized by the body as healing. There is nothing in the body composed of those chemicals. How could the body be healed by anything that un-natural, indeed toxic?

The strain causes the body to completely snowball as it tries to rid itself of manufactured medicine. What’s worse, the drugs are suppressive, pushing illness further into the body, exponentially risking further auto immune disease. We need infections to come out, not cram them back in. We see this all the time with eczema and steroid use: eczema >asthma>food allergies>leaky gut>Crohns> ASD or other mental illness. We are brainwashed to not see the association, but critically connecting the dots reveals that steroid use, especially, causes mental and behavioral problems. Nowadays, so many of us are eyewitnesses to the destructive nature of Western medicine that it is difficult to defend it anymore.

We manage the complications of PANDAS and PANS, ASD, Lyme and co-infections by detoxing parasites and infections using biofeedback, herbals, homeopathics. As a side note, we have also regenerated the organs as well. Namely the digestive organs, thyroid, kidneys, and liver. Lyme can do a lot of damage to the organs so restoring them is important. Signs that these are healed are regular and proper bowel movements without pain, better emotions and mental ability, reduced food allergens, eczema clearing up, regular urination without pain, gallstones and kidney stones reduced or eliminated, and the colic of the same organs reduced and eliminated as well.

The surprising benefit of parasite and infection detox was witnessing the symptoms of ASD, PANDAS and PANS melt away. It was gradual, yet obvious, and despite the length of time it takes to properly detox, it did not take long for the benefits to appear. Flares lost intensity and frequency, triggers disappeared, trivial incidents causing psycho-drama lasting for hours no longer tormented us, auditory hallucinations ceased, OCD and repetitive questions stopped, and symptoms of ‘ASD’ improved. One of my family members dropped a whopping 75 points from ATEC score and finally became potty trained at the age of nine. These are just a handful of many examples.

If you are wanting assistance with detox via Biofeedback, herbal, and homeopathy get in touch with me at New Leaf Holistic!